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Social Security Expands Compassionate Allowances Program for Claimants with Severe Disabilities

Social Security expands the Compassionate Allowances program by adding 12 new qualifying conditions.   The Compassionate Allowances program identifies severe medical conditions that qualify claimants for disability benefits (SSDI, SSI) often based upon the diagnosis of the disease alone.  Acting Commissioner of Social Security, Kilolo Kijakazi, stated that the “Compassionate Allowances program helps us address barriers by helping accelerate the disability application process for people who are likely to get approved for benefits due to the severity of their medical condition.”   Said simply, the program helps to reduce waiting time to reach a disability determination for individuals with the most serious disabilities.

The 12 new Compassionate Allowance conditions include:

  • Charlevoix Saguenay Spastic Ataxia (ARSACS)
  • Choroid Plexus Carcinoma
  • CIC-rearranged Sarcoma
  • Congenital Zika Syndrome
  • Desmoplastic Mesothelioma
  • Duchenne Muscular Dystrophy-Adult
  • Pericardial Mesothelioma
  • Refractory Hodgkin Lymphoma
  • Renpenning Syndrome
  • SCN8A Related Epilepsy with Encephalopathy
  • SYNGAP1-related NSID
  • Taybi-Linder Syndrome

There are currently over 254 conditions which Social Security has identified as qualifying for Compassionate Allowances which can be found at https://www.ssa.gov/compassionateallowances/conditions.htm

Social Security receives information from the public, comments received from the Social Security and Disability Determination Service communities, counsel from medical and scientific experts, research with the National Institutes of Health (NIH), and information received from past public outreach hearings regarding potential Compassionate Allowance conditions. For more information on how to submit a potential Compassionate Allowance condition to SSA visit Submit the Name of a Condition for Consideration.

For more information about Compassionate Allowances, visit https://www.ssa.gov/compassionateallowances/

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